Saturday, November 14th, 2020

Nalcrom Update as of 14 November 2020

Sanofi (maker of licensed Nalcrom) are estimating that their product will return to the UK in the week commencing 14 December. The Department of Health and Social Care estimates on their website that it will return in early January (perhaps taking into account that Sanofi’s date has already changed once). We have been in contact 


Saturday, November 14th, 2020

Nalcrom Update as of 5 November 2020

Nalcrom (oral sodium cromoglycate) is not expected to be available in the UK from the usual supplier until the week commencing November 23, 2020. In the interim the DHSC has identified several importing pharmacies that have secured a route for importing sodium cromoglycate that is not licensed in the UK (but is licensed in other 


Monday, October 12th, 2020

Nalcrom Expected Back in Stock December/January

We are very sorry to report that Sanofi have reported that Nalcrom capsules will not be available again until mid-December to early January. Sanofi (maker of licensed Nalcrom) are estimating that their product will return to the UK in the week commencing 14 December. The Department of Health and Social Care estimates on their website 


Monday, July 20th, 2020

COVID-19 Supermarket Letter

We know how difficult it has been for many of you to access safe foods throughout this period. We would like to invite you to join us, along with the Mast Cell Action, in contacting your local supermarket and ask for them to consider your needs during these difficult times. Please find below a downloadable 


Monday, July 20th, 2020

Shielding and Exit plan

We are pleased to be able to share this document which has been created in collaboration with Mast Cell Action (https://www.mastcellaction.org) to help share what we currently know about government guidance on shielding vulnerable patients during the Covid-19 pandemic and to share suggestions and experiences to try to help make things easier during this difficult 


Sunday, March 29th, 2020

The COVID-19 Outbreak Advice for UK patients with Mast Cell Diseases from UK Mast Cell Disease Doctors March 27, 2020

There is much we don’t know about how COVID-19 might affect mast cell disease patients. We have heard now from a small number of people with a mast cell disease who also believe they have had COVID-19 (though no confirmed cases because testing is now only being done in hospital and none has required hospitalisation) 


Wednesday, December 11th, 2019

AGM 2019

We are holding our 2019 Annual General Meeting and Conference at the Hilton Manchester Airport Hotel on Saturday 25th January 2020. Our featured speaker will be Dr Frank Siebenhaar, a leading international expert on mast cells and who sees patients as an allergist/dermatologist.  Prof. Siebenhaar’s research focuses on the biology of mast cells and the pathophysiology of mast cell 


Wednesday, December 4th, 2019

Ketotifen Update (4th December 2019)

Ketotifen Tablets(1mg) may be available through four companies that have permission to import unlicensed medications into the UK. Those companies are Mawdsley’s, Waymade PLC, Alium Medical, and Target Healthcare. Your pharmacist or hospital can contact those companies directly to find out which products they can secure. As soon as we have more information about the 


Sunday, October 20th, 2019

Ranitidine Recalls?

Many people with mast cell diseases will have been prescribed the H2 blocker, Ranitidine.  You may have seen that there are concerns about whether some ranitidine products contain a chemical called NDMA. NDMA has been shown to cause health problems in laboratory rats who have been given NDMA in large doses.  For this reasons, some 


Sunday, October 20th, 2019

Cutting Out Chocolate for Charity!

Helen Stevens and her daughter Ruby (age 9) quit their favourite sweet treat, chocolate, for a whole month! The family wanted to support their youngest member, Florence, who has Mastocytosis. When Florence was first diagnosed, Helen found that our website offered some much-needed clarity on the condition. She says that she now uses our information