Sunday, May 18th, 2025

New Magazine Issue All about Systemic Mastocytosis!

Rare Revolution Magazine have put together a terrific issue on systemic mastocytosis, featuring articles by leading UK physicians on SM and on anaphylaxis in mast cell diseases and interviews with our patients and carers, as well as articles about SM advocates from around the world. Take a look! Many thanks for Blueprint Medicines for sponsoring 

Thursday, May 8th, 2025

Miles for Mast Cells Fundraiser!

We are well into our biggest fundraiser of the year. In the month of May we have 44 people walking, cycling, swimming for us to raise awareness and funds to support our work. To make a donation to our campaign go to Miles for Mast Cells Fundraiser

Friday, March 22nd, 2024

Ketotifen Elixir and Tablets in stock with Alloga

Ketotifen (Zaditen) tablets and elixir are both in good stock at Alloga UK as of May 8, 2025. We have had several queries about availability, thus the update. We have learned that the wholesaler, Phoenix, will not be stocking ketotifen (Zaditen) tablets or elixir, but other wholesalers including Alliance and AAH are able to provide 

Friday, March 8th, 2024

Ketotifen Elixir Back in Stock, March 8, 2024

Ketotifen (Zaditen) Elixir, which has been out of stock since December, is now back in stock as of March 8, 2024.  It may take several days for the supplies to be entered into the system at the distributor, Alloga.  As usual, if a pharmacy’s preferred wholesaler does not carry the product, it can be ordered 

Monday, September 11th, 2023

Ketotifen (Zaditen) Tablets Stock Due Week of December 4-8, 2023

Ketotifen tablets are out of stock.  We have been told they are expected back in the second week of December. Ketotifen elixir (liquid) is available and in stock with Alloga UK.   The code for the elixir is Code USP0832 ZADITEN KETOTIFEN ELIXIR 300ML S/Berry.  If your pharmacist is having trouble obtaining the elixir please 

Friday, August 11th, 2023

Generic Sodium Cromoglicate in good supply

The branded version of sodium cromoglicate called Nalcrom (Sanofi) is no longer distributed in the UK. Generic sodium cromoglicate 100mg capsules are in good supply from Somex Pharmaceuticals.  If your pharmacy is having trouble finding stock, please share the following codes with them so they can be certain they are asking for the correct products 

Tuesday, May 9th, 2023

Recall of all Emerade 300 and 500 mcg Adrenaline (Epinephrine) Pens

The manufacturer of Emerade pens has shared the news on May 9, 2023 that it is recalling all 300 mcg and 500 mcg due to a risk of malfunction.   They should be returned to the pharmacy and replaced with either an Epipen brand or Jext brand 300 mcg pen. Please see this link for 

Tuesday, April 18th, 2023

Ketotifen 1mg tablets back in stock on April 18/19 2023

Ketotifen tablets are arriving at Alloga UK today, April 17, 2023 and should be available for order by Wednesday, April 18 or Thursday April 19.  Pharmacies can order directly from Alloga UK and be billed through their preferred wholesaler, which may speed up delivery to the patient. For ordering information and regular updates on supplies 

Wednesday, January 4th, 2023

AGM 2022, Wednesday 25 January 2023

We are holding our 2022 Annual General Meeting virtually via Zoom on Wednesday 25 January 2023. We hope to hold our next conference in April 2023. Minutes From AGM 2021. More details to follow.

Tuesday, November 29th, 2022

MAKE YOUR VOICE HEARD!!! Surveys for patients and physicians

Systemic Mastocytosis (SM) patients and their physicians in the UK (and soon, elsewhere in Europe), please participate in this groundbreaking survey on the patient experience with all forms of SM, the burden it causes, and our unmet needs! We are excited to learn more about how patients experience life with SM– and the data can