Friday, October 22nd, 2021
Ketotifen (Zaditen) 1mg tablets are back in stock with Alloga, the UK distributors. While it can take time for the product to travel to the pharmacies via wholesalers, pharmacies can order directly from Alloga and be invoiced by their usual wholesalers, which may speed up the process.
Wednesday, October 13th, 2021
Using a survey, we sought to capture the experience of people with mast cell diseases when having their COVID-19 vaccination, beginning in February 2021. We understood that these patients and their doctors could be concerned about how well the vaccinations would be tolerated. We are pleased to share a peer-reviewed letter published today in HemaSphere,
Friday, October 1st, 2021
Olivia is six and has recently been diagnosed with systemic mastocytosis after being diagnosed with cutaneous mastocytosis at the age of six months. This weekend her aunts and her grandmother are running the Virtual London Marathon to raise money for The UK Mastocytosis Support Group. Olivia’s mum, Charlotte Lane is a trustee of the charity
Friday, September 10th, 2021
We are very pleased to share that there are now two new licensed sodium cromoglycate products that we hope will meet all or at least much of the demand over the next several months. The Department of Health and Social Care have informed us that during the week ending 17 September, Somex Pharmaceuticals will begin
Thursday, August 19th, 2021
The UK Mastocytosis Support Group and Leukaemia Care successfully campaign for patients with Advanced Systemic Mastocytosis (AdvSM) to access new treatment The National Institute for Health and Care Excellence (NICE) have today made recommendations for midostaurin to become an NHS treatment option for advanced systemic mastocytosis (AdvSM) patients in England. Advanced SM is used to
Thursday, August 19th, 2021
The UK Mastocytosis Support Group has received the following statement from Sanofi, the licensed supplier of Nalcrom (sodium cromoglycate capsules) in the UK: “Following queries from The UK Mastocytosis Support Group regarding the situation and future availability of Nalcrom (sodium cromoglicate), Sanofi would like to clarify that the use of Nalcrom for the treatment of
Wednesday, March 24th, 2021
Mastocytosis may present as a skin condition – but patients with the disease are at increased risk of anaphylaxis, while its systemic form can be serious and, in some cases, fatal. Read more here.
Saturday, March 20th, 2021
Please find an updated stock level statement for sodium cromoglicate.
Tuesday, March 2nd, 2021
The 2021 Virgin Money London Marathon is taking place on Sunday 3 October, with a record 50,000 participants running on the streets of the capital, from Blackheath to The Mall. On the same day, an additional 50,000 people will have the chance to take on the world’s greatest marathon on the course of their choice
Sunday, December 20th, 2020
We are holding our 2020 Annual General Meeting and Conference virtually on Saturday 16th January 2021, beginning at 10 am. Our conference featured speaker will be: Dr Qasim Aziz, a gastroenterologist who will be speaker about GI symptoms in all forms of mast cell disease (Mastocytosis, MCAS and HaTS). Our survey this summer identified GI
Address registered with the Charity Commission:
86-90 Paul Street
London
EC2A 4NE
Registered name:
The UK Mastocytosis Support Group
Charity number is:
1154007