Wednesday, March 24th, 2021

Be aware of the signs and symptoms of mastocytosis

Mastocytosis may present as a skin condition – but patients with the disease are at increased risk of anaphylaxis, while its systemic form can be serious and, in some cases, fatal. Read more here.


Saturday, March 20th, 2021

Nalcrom Update as of 16 March 2021

Please find an updated stock level statement for sodium cromoglicate.  


Tuesday, March 2nd, 2021

Virtual Virgin Money London Marathon 2021

The 2021 Virgin Money London Marathon is taking place on Sunday 3 October, with a record 50,000 participants running on the streets of the capital, from Blackheath to The Mall. On the same day, an additional 50,000 people will have the chance to take on the world’s greatest marathon on the course of their choice 


Sunday, December 20th, 2020

Conference and AGM 16 January, 2021

We are holding our 2020 Annual General Meeting and Conference virtually on Saturday 16th January 2021, beginning at 10 am. Our conference featured speaker will be: Dr Qasim Aziz, a gastroenterologist who will be speaker about GI symptoms in all forms of mast cell disease (Mastocytosis, MCAS and HaTS).  Our survey this summer identified GI 


Monday, July 20th, 2020

COVID-19 Supermarket Letter

We know how difficult it has been for many of you to access safe foods throughout this period. We would like to invite you to join us, along with the Mast Cell Action, in contacting your local supermarket and ask for them to consider your needs during these difficult times. Please find below a downloadable 


Monday, July 20th, 2020

Shielding and Exit plan

We are pleased to be able to share this document which has been created in collaboration with Mast Cell Action (https://www.mastcellaction.org) to help share what we currently know about government guidance on shielding vulnerable patients during the Covid-19 pandemic and to share suggestions and experiences to try to help make things easier during this difficult 


Sunday, March 29th, 2020

The COVID-19 Outbreak Advice for UK patients with Mast Cell Diseases from UK Mast Cell Disease Doctors March 27, 2020

There is much we don’t know about how COVID-19 might affect mast cell disease patients. We have heard now from a small number of people with a mast cell disease who also believe they have had COVID-19 (though no confirmed cases because testing is now only being done in hospital and none has required hospitalisation) 


Wednesday, December 4th, 2019

Ketotifen Update (4th December 2019)

Ketotifen Tablets(1mg) may be available through four companies that have permission to import unlicensed medications into the UK. Those companies are Mawdsley’s, Waymade PLC, Alium Medical, and Target Healthcare. Your pharmacist or hospital can contact those companies directly to find out which products they can secure. As soon as we have more information about the 


Sunday, October 20th, 2019

Ranitidine Recalls?

Many people with mast cell diseases will have been prescribed the H2 blocker, Ranitidine.  You may have seen that there are concerns about whether some ranitidine products contain a chemical called NDMA. NDMA has been shown to cause health problems in laboratory rats who have been given NDMA in large doses.  For this reasons, some 


Sunday, October 20th, 2019

Cutting Out Chocolate for Charity!

Helen Stevens and her daughter Ruby (age 9) quit their favourite sweet treat, chocolate, for a whole month! The family wanted to support their youngest member, Florence, who has Mastocytosis. When Florence was first diagnosed, Helen found that our website offered some much-needed clarity on the condition. She says that she now uses our information