Monday, September 11th, 2023
Ketotifen tablets are out of stock. We have been told they are expected back in the second week of December. Ketotifen elixir (liquid) is available and in stock with Alloga UK. The code for the elixir is Code USP0832 ZADITEN KETOTIFEN ELIXIR 300ML S/Berry. If your pharmacist is having trouble obtaining the elixir please
Friday, August 11th, 2023
The branded version of sodium cromoglicate called Nalcrom (Sanofi) is no longer distributed in the UK. Generic sodium cromoglicate 100mg capsules are in good supply from Somex Pharmaceuticals. If your pharmacy is having trouble finding stock, please share the following codes with them so they can be certain they are asking for the correct products
Tuesday, May 9th, 2023
The manufacturer of Emerade pens has shared the news on May 9, 2023 that it is recalling all 300 mcg and 500 mcg due to a risk of malfunction. They should be returned to the pharmacy and replaced with either an Epipen brand or Jext brand 300 mcg pen. Please see this link for
Tuesday, April 18th, 2023
Ketotifen tablets are arriving at Alloga UK today, April 17, 2023 and should be available for order by Wednesday, April 18 or Thursday April 19. Pharmacies can order directly from Alloga UK and be billed through their preferred wholesaler, which may speed up delivery to the patient. For ordering information and regular updates on supplies
Wednesday, January 4th, 2023
We are holding our 2022 Annual General Meeting virtually via Zoom on Wednesday 25 January 2023. We hope to hold our next conference in April 2023. Minutes From AGM 2021. More details to follow.
Tuesday, November 29th, 2022
Systemic Mastocytosis (SM) patients and their physicians in the UK (and soon, elsewhere in Europe), please participate in this groundbreaking survey on the patient experience with all forms of SM, the burden it causes, and our unmet needs! We are excited to learn more about how patients experience life with SM– and the data can
Tuesday, January 4th, 2022
We are holding our 2021 Annual General Meeting and Conference virtually via Zoom on Saturday 22th, January 2022. Click here to register. We are excited to bring you outstanding speakers including: Dr Sarah Glover, Clinician and Researcher on Hereditary Alpha Tryptasaemia Dr Bethan Myers, Haematologist Dr Deepti Radia, Haematologist Dr Andrew Whyte, Allergist There will
Wednesday, December 1st, 2021
The free virtual training course previously scheduled for January 21, 2022 has been moved to Friday March 18, 2022 due to COVID-related staffing policies currently in place. Apologies for the change! We hope that means that we will see all those who have already registered and new people as well! If you are already
Friday, October 22nd, 2021
Ketotifen (Zaditen) 1mg tablets are back in stock with Alloga, the UK distributors. While it can take time for the product to travel to the pharmacies via wholesalers, pharmacies can order directly from Alloga and be invoiced by their usual wholesalers, which may speed up the process.
Wednesday, October 13th, 2021
Using a survey, we sought to capture the experience of people with mast cell diseases when having their COVID-19 vaccination, beginning in February 2021. We understood that these patients and their doctors could be concerned about how well the vaccinations would be tolerated. We are pleased to share a peer-reviewed letter published today in HemaSphere,
Address registered with the Charity Commission:
86-90 Paul Street
London
EC2A 4NE
Registered name:
The UK Mastocytosis Support Group
Charity number is:
1154007