Sunday, December 20th, 2020
We are holding our 2020 Annual General Meeting and Conference virtually on Saturday 16th January 2021, beginning at 10 am. Our conference featured speaker will be: Dr Qasim Aziz, a gastroenterologist who will be speaker about GI symptoms in all forms of mast cell disease (Mastocytosis, MCAS and HaTS). Our survey this summer identified GI
Monday, July 20th, 2020
We know how difficult it has been for many of you to access safe foods throughout this period. We would like to invite you to join us, along with the Mast Cell Action, in contacting your local supermarket and ask for them to consider your needs during these difficult times. Please find below a downloadable
Monday, July 20th, 2020
We are pleased to be able to share this document which has been created in collaboration with Mast Cell Action (https://www.mastcellaction.org) to help share what we currently know about government guidance on shielding vulnerable patients during the Covid-19 pandemic and to share suggestions and experiences to try to help make things easier during this difficult
Sunday, March 29th, 2020
There is much we don’t know about how COVID-19 might affect mast cell disease patients. We have heard now from a small number of people with a mast cell disease who also believe they have had COVID-19 (though no confirmed cases because testing is now only being done in hospital and none has required hospitalisation)
Wednesday, December 4th, 2019
Ketotifen Tablets(1mg) may be available through four companies that have permission to import unlicensed medications into the UK. Those companies are Mawdsley’s, Waymade PLC, Alium Medical, and Target Healthcare. Your pharmacist or hospital can contact those companies directly to find out which products they can secure. As soon as we have more information about the
Sunday, October 20th, 2019
Many people with mast cell diseases will have been prescribed the H2 blocker, Ranitidine. You may have seen that there are concerns about whether some ranitidine products contain a chemical called NDMA. NDMA has been shown to cause health problems in laboratory rats who have been given NDMA in large doses. For this reasons, some
Sunday, October 20th, 2019
Helen Stevens and her daughter Ruby (age 9) quit their favourite sweet treat, chocolate, for a whole month! The family wanted to support their youngest member, Florence, who has Mastocytosis. When Florence was first diagnosed, Helen found that our website offered some much-needed clarity on the condition. She says that she now uses our information
Wednesday, November 21st, 2018
PayPal Giving Fund is doubling donations to The UK Mastocytosis Support Group on Giving Tuesday, November 27, 2018. Your donations help support medical research, help us provide support to patients through events like our annual conference, and helps us educate doctors and nurses about mast cell diseases. Please give generously! If giving is part of
Friday, October 19th, 2018
I am on Pariet [rabeprazole sodium], Lipidor [atorvastatin] and Prozac [fluoxetine]. I carry an epipen and Clarityn. I am allergic to Zirtek [cetirizine] and also Ventolin [salbutamol]. My worse problem seems to be a reaction to perfume and of course the depression which is under control with Prozac and a year’s counselling. I can’t eat
Friday, October 19th, 2018
I had various strange symptoms when I was young including extreme urticaria in sunlight and swelling of the lips and tingling when I had hot drinks. Oddly both these fizzled out in my 20s though I am still not very well in hot weather. I have an extreme wasp allergy and having been de-sensitized and
Address registered with the Charity Commission:
86-90 Paul Street
London
EC2A 4NE
Registered name:
The UK Mastocytosis Support Group
Charity number is:
1154007