Wednesday, January 4th, 2023

UK MASTO Conference 2023

We hope to hold our next conference in April 2023. More details by March 2023.


Wednesday, January 4th, 2023

AGM 2022, Wednesday 25 January 2023

We are holding our 2022 Annual General Meeting virtually via Zoom on Wednesday 25 January 2023. We hope to hold our next conference in April 2023. Minutes From AGM 2021. More details to follow.


Tuesday, November 29th, 2022

MAKE YOUR VOICE HEARD!!! Surveys for patients and physicians

Systemic Mastocytosis (SM) patients and their physicians in the UK (and soon, elsewhere in Europe), please participate in this groundbreaking survey on the patient experience with all forms of SM, the burden it causes, and our unmet needs! We are excited to learn more about how patients experience life with SM– and the data can 


Wednesday, October 13th, 2021

Findings from UKMasto Survey on COVID-19 Vaccinations in Mastocytosis Published in the Journal HemaSphere

Using a survey, we sought to capture the experience of people with mast cell diseases when having their COVID-19 vaccination, beginning in February 2021.  We understood that these patients and their doctors could be concerned about how well the vaccinations would be tolerated.  We are pleased to share a peer-reviewed letter published today in HemaSphere, 


Thursday, August 19th, 2021

Midostaurin to Be Funded by NHS After Campaign by UKMasto and Leukaemia Care

The UK Mastocytosis Support Group and Leukaemia Care successfully campaign for patients with Advanced Systemic Mastocytosis (AdvSM) to access new treatment The National Institute for Health and Care Excellence (NICE) have today made recommendations for midostaurin to become an NHS treatment option for advanced systemic mastocytosis (AdvSM) patients in England. Advanced SM is used to