Cutting Out Chocolate for Charity!

Helen Stevens and her daughter Ruby (age 9) quit their favourite sweet treat, chocolate, for a whole month! The family wanted to support their youngest member, Florence, who has Mastocytosis. When Florence was first diagnosed, Helen found that our website offered some much-needed clarity on the condition. She says that she now uses our information 

Adele and Mandy’s story

Mandy first showed her marks at 8 weeks old and they steadily progressed from there; I had been told by many GPs that it was eczema. At 8 months old I asked for her to be referred and for the next four months she had tests for everything. No one knew what it was but 

Caroline’s Story

I’m Caroline and would like to fill you in on my history. I’m 59, married, with 2 sons in their 20’s. I was diagnosed with Masto/Urticaria Pigmentosa 17 years ago and by the first consultant. I continued to see him for many years but government cutbacks meant he wasn’t allowed to see dependants any more