Janette and daughter Helen’s Story

Shortly after Helen was born we noticed spots on her bottom. These later spread to the whole of her torso, front and back, some down her legs and up to her neck. On a couple of occasions, mainly in shops when she got too hot, the spots would become red and angry-looking. I took her 

Hear Dr Theoharides Speak on Mast Cells, Mastocytosis and mast Cell Activation Syndrome

Dr Theoharis Theoharides, a leading mast cell researcher, was the guest speaker at our AGM in December 2017.   His presentation about mast cells and their role in mast cell diseases was fascinating– and complex so it’s great to be able to watch it more than once!  

Paul’s Story

Paul has had type 2 diabetes since 1997. This year he was passed on to the haematologist by the thoracic specialist after a very persistent cough. After a recent bone marrow biopsy Paul was told he had systemic mastocytosis. CT scans showed his spleen was three times bigger than normal. No treatment has been suggested