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Member Conference and AGM

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

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Andrea’s Story

My name is Andrea and I developed the first signs of urticaria pigmentosa at about the age of 24 and I am now 43. I stopped going to see my consultant some years ago as it was simply a case of saying “Hello, keep taking the antihistamines and see you in 12 months time”. I

Danielle and daughter Marina’s story

Marina my daughter has Diffuse Cutaneous Mastocytosis (DCM) and she is now 26 months old. We had a long battle to try and get her diagnosed; she was finally diagnosed at 15 months old. At the age of 9 months she would crawl around and with any knock or bang she would blister. She gets

Raymond’s Story

I have been diagnosed with Idiopathic Anaphylaxis (IA). It all started at the tender age of 48 when I woke in the night, head ringing, itching all over and when I looked in the mirror a face the size of a football. I uttered the famous words to my wife “I think there’s a problem”.

DONATE

Please consider donating to support The UK Mastocytosis Support Group and help us provide support, advocate for patients and fund research into mast cell diseases.

We especially welcome donations on Giving Tuesday, November 27, 2018, when PayPal Giving Fund will double your donation to us!!

We are a registered UK charity (1154007).

CONTACT DETAILS

Registered name:
The UK Mastocytosis Support Group

Address registered with the Charity Commission:
31 Foxholes Lane
Altofts
WF62PD
E: info@ukmasto.org

Charity number is: 1154007

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