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Member Conference and AGM

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

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Stuart’s Story

I just turned 40 this year. I have had the spots for as long as I can remember, which isn’t very long sometimes, but have only had the other symptoms for a few months. Last year I went to my GP as I had an upset stomach nearly every day for a few months. She

Claire’s Story

I have had Urticaria Pigmentosa (UP), a form of mastocytosis, since in my late twenties (I am now 65), which my consultant assures me is cutaneous, not systemic. However, the spots each year get gradually worse, especially on the outer thighs, where they now look almost like strawberry marks as the spots are joining together.

Max’s Story

I am 49 years old and was diagnosed with Mastocytosis at the age of 16. I have extensive UP, covering most of my body except my face and I have some systemic symptoms – like enlarged liver and spleen. The only adverse side-effects I have is that I do have reactions to anything alcoholic (although

DONATE

Please consider donating to support The UK Mastocytosis Support Group and help us provide support, advocate for patients and fund research into mast cell diseases.

We especially welcome donations on Giving Tuesday, November 27, 2018, when PayPal Giving Fund will double your donation to us!!

We are a registered UK charity (1154007).

CONTACT DETAILS

Registered name:
The UK Mastocytosis Support Group

Address registered with the Charity Commission:
32 Foxholes Lane
Altofts
WF62PD
E: info@ukmasto.org

Charity number is: 1154007

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