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Member Conference and AGM

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

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Alice’s story

I am a mother of 2 grown up children and was widowed in 2007. After several years with what looked like freckles increasing on my legs I started to suffer from several different unusual symptoms, the worst being excruciating pain in my feet. I would go backwards and forwards to the GP with what seemed

Hayley and son Mark’s Story

Our son Mark has Cutaneous Mastocytosis. I guess he is pretty rare as only about one in 400,000 – 500,000 in the UK has this condition. Sounds quite cool but actually it kinda’ sucks as it took many months and wrong diagnoses to figure out why our son is so “spotty” and what caused his

Jason’s Story

I am 29 years old and am currently being seen by a consultant at a local hospital. Hopefully he will sort out an appointment with an SM [systemic mastocytosis] specialist soon. I first noticed the pink freckles appearing about 4 years ago and so went to the doctors where they told me it was acne.

DONATE

Please consider donating to support The UK Mastocytosis Support Group and help us provide support, advocate for patients and fund research into mast cell diseases.

We especially welcome donations on Giving Tuesday, November 27, 2018, when PayPal Giving Fund will double your donation to us!!

We are a registered UK charity (1154007).

CONTACT DETAILS

Registered name:
The UK Mastocytosis Support Group

Address registered with the Charity Commission:
32 Foxholes Lane
Altofts
WF62PD
E: info@ukmasto.org

Charity number is: 1154007

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