Daredevil duo raise £1,200 for UK Masto!

Congratulations to Jess and Sandra Hedley who recently jumped out a plane in order to raise funds for UK Masto. Their skydiving adventure was made all the more remarkable by the fact that the temperature outside the plane when they jumped was a wicked minus forty degrees… brrrr, that’s cold in anyone’s books. Jess and 

Christopher’s Story

I have just turned 70. Urticaria Pigmentosa hit me 29 years ago – I do feel a bit of a fraud as so far I have had no really bad effects, as far as I know. All my body – except my face – is reasonably heavily spotted. I do get tired – but cannot 

Iris’s Story

I was diagnosed with Urticaria Pigmentosa in 1983 and things remained calm for most of the time except if I was in the sun, or having a hot shower. I was covered in Pigment marks on most of my body and limbs but not my face. This was till around 8 years ago and things