History of masto and me: Odd pink freckles appeared on my thighs in my early thirties, no other symptoms. In my late forties I mentioned it to my GP as they had multiplied significantly. By now I was also getting hives/nettle rash when stressed (I had quite a stressy job). He referred me to the
I currently take ranitidine, loratadine, sodium cromoglicate, montelukast. I took interferon A for the past seven months but it had no effect. My main symptoms are headache, stomach problems, severe bone pain and extreme exhaustion. I had a third bone marrow biopsy to confirm the gene affected. I have had two bad reactions to the
Alana and son Jay’s story
Jay is 22 months old and was diagnosed with Urticaria Pigmentosa when he was about 13 months old, although he has suffered with it from when he was a few days old. He has a rash all over his torso and legs most of the time and suffers from stomach cramps and loose stools.