Some people with mast cell diseases are prescribed a medication called ketotifen, which is an H1 antihistamine and mast cell stabiliser.   It can sometimes be a challenge to obtain.   On this page we try to keep patients, pharmacists and doctors up to date with the latest information on how to obtain ketotifen.

Update as of August 8, 2019

Ketotifen Tablets are currently UNavailable.  Though there may still be stock left from earlier supplies, no new tablets are being imported at this time.   It is worth ringing a range of pharmacies (chains and independent) to see if you can find supplies now, but at some stage that supply will be depleted.  We do not have an update at this time as to how long the tablets will be unavailable.

The supplier has suggested that patients discuss with their doctors whether trying the liquid (details below) is a good alternative. Please discuss with the prescribing doctor how to try the new formulation. We advise anyone making such a substitution to do so with slowly and cautiously since people with mast cell diseases can react to the inactive ingredients in medications.

This problem has been reported to the UK authorities.

Ketotifen Elixir (liquid) is currently available.   Please see below for the codes for your pharmacist if you are having trouble getting it.

 

Update as of February 12, 2019

Ketotifen Elixir (liquid) is currently available in strawberry flavour.   There are new identification numbers for the liquid due to the recent switch from the banana flavoured product.  If you are having trouble obtaining it, please provide your pharmacist with the information in the table below so that it can be ordered correctly.  Please email us at info@ukmasto.org if you have provided these updated numbers and are still unable to obtain the product.

Ketotifen Tablets are currently available.  Should your pharmacist have trouble obtaining them please provide your pharmacist with the information in the table below so that the tablets can be ordered correctly.  Please email us at info@ukmasto.org if you have provided these updated numbers and are still unable to obtain the product.