Patient Support

We provide support to patients and encourage patients to provide support to each other.

Web Forums

Our community support takes place in two settings.  You can join the platform, Health Unlocked, creating an alias to provide some privacy, and join our community here.   We also have a Facebook group and welcome people there with the reminder that they will be using their own profile and name and so, though it is not fully open to the public anything you share there may become known more publicly.  You can join that by going to if you are a Facebook member.

Information brochures

You can download our information brochure and cards that help parents and young patients explain the challenges of mast cell diseases.  You can also request hard copies of these brochures be mailed to you by emailing us.


We hold a patient conference every year, at which members have the opportunity to hear from leading doctors working on mast cell diseases from the UK and from abroad.   Keep an eye out for the details posted on this website.

1 on 1 support

Our support team can provide telephone support to new patients and their families or to those facing a change in symptoms or health status.  Email us to set up a call.