Paediatric Anaesthesia   
Anaesthesia Protocol   
UK Masto - Support, Advocacy, Research

 

Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Hayley and son Mark’s Story
Our son Mark has Cutaneous Mastocytosis. I guess he is pretty rare as only about one in 400,000 – 500,000 in the UK has this condition. Sounds quite cool but actually it kinda’ sucks as it took many months and wrong diagnoses to figure out why our son is so “spotty” and what caused his 

Naomi’s Story
I currently take ranitidine, loratadine, sodium cromoglicate, montelukast. I took interferon A for the past seven months but it had no effect. My main symptoms are headache, stomach problems, severe bone pain and extreme exhaustion. I had a third bone marrow biopsy to confirm the gene affected. I have had two bad reactions to the 

Danielle and daughter Marina’s story
Marina my daughter has Diffuse Cutaneous Mastocytosis (DCM) and she is now 26 months old. We had a long battle to try and get her diagnosed; she was finally diagnosed at 15 months old. At the age of 9 months she would crawl around and with any knock or bang she would blister. She gets 

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AGM and Conference 2019

Our 2019 AGM and Conference is on Saturday 25th January 2020 book now.


 


 

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