Paediatric Anaesthesia   
Anaesthesia Protocol   
UK Masto - Support, Advocacy, Research

 

Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

Learn More  

Kirsten and daughter Maya’s Story
Maya, who has had UP [urticaria pigmentosa] since about 3 months, is now doing really well at 11, she has recently been getting better and better. As I have often said to other parents – there was an improvement in Maria’s Masto from when she was 3 – 4 but it was then very gradual, 

Jessica and son Austin’s Story
My son Austin (21 months) was diagnosed with UP [urticaria pigmentosa], I noticed red/brown patches on his back from about 6 weeks old and mentioned it to my health visitor – she told me it was eczema; I then spoke to a GP and they said the same, so I left it. I then took 

Alice’s story
I am a mother of 2 grown up children and was widowed in 2007. After several years with what looked like freckles increasing on my legs I started to suffer from several different unusual symptoms, the worst being excruciating pain in my feet. I would go backwards and forwards to the GP with what seemed 

Donate Now  

Member Conference and AGM

 

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda


 


 

BACK TO TOP