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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Elaine’s Story
I am Elaine and I have had SM [systemic mastocytosis] for 3 years but it was only when I had been going to a dermatologist 9 years and now a new consultant. He did biopsy on my skin then sent me to Haematology, they did a bone marrow biopsy and SM was positive. I am 

AGM 2019
We are holding our 2019 Annual General Meeting and Conference at the Hilton Manchester Airport Hotel on Saturday 25th January 2020. Our featured speaker will be Dr Frank Siebenhaar, a leading international expert on mast cells and who sees patients as an allergist/dermatologist.  Prof. Siebenhaar’s research focuses on the biology of mast cells and the pathophysiology of mast cell 

Marcia and baby Samantha’s Story
My name is Marcia and after a wonderful (first) pregnancy I had Samantha by emergency C section. I remember when they lifted her out of my tummy I looked at her hands. I noticed what looked like a heat lump on the middle knuckle on her right hand but I didn’t think anything else about 

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AGM and Conference 2019

Our 2019 AGM and Conference is on Saturday 25th January 2020 book now.