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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Max’s Story
I am 49 years old and was diagnosed with Mastocytosis at the age of 16. I have extensive UP, covering most of my body except my face and I have some systemic symptoms – like enlarged liver and spleen. The only adverse side-effects I have is that I do have reactions to anything alcoholic (although 

AGM 2017
AGM, December 2017 Impressions from new trustee, Andrew Dugdale: It was really good meeting those of you who attended the AGM on Saturday, my first exposure to actually meeting people in the group, rather than just ‘meeting’ via the list serve, and it was an excellent experience. What a great bunch of people we have 

Naomi’s Story
I currently take ranitidine, loratadine, sodium cromoglicate, montelukast. I took interferon A for the past seven months but it had no effect. My main symptoms are headache, stomach problems, severe bone pain and extreme exhaustion. I had a third bone marrow biopsy to confirm the gene affected. I have had two bad reactions to the 

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Member Conference and AGM


10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda