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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Louise and Julian’s Story
My name is Louise, my son Julian is age four, he will be five in three weeks. He was diagnosed with UP two months ago. Julian got chickenpox when he was four months old. He was left with small marks on his skin. For years I assumed they were from the chickenpox. I had no 

Christopher’s Story
I have just turned 70. Urticaria Pigmentosa hit me 29 years ago – I do feel a bit of a fraud as so far I have had no really bad effects, as far as I know. All my body – except my face – is reasonably heavily spotted. I do get tired – but cannot 

AGM 2019
We are holding our 2019 Annual General Meeting and Conference at the Hilton Manchester Airport Hotel on Saturday 25th January 2020. Our featured speaker will be Dr Frank Siebenhaar, a leading international expert on mast cells and who sees patients as an allergist/dermatologist.  Prof. Siebenhaar’s research focuses on the biology of mast cells and the pathophysiology of mast cell 

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