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UK Masto - Support, Advocacy, Research

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Ketotifen Elixir Out of Stock until end of July, 2024
Alloga UK, who distribute ketotifen (zaditen) report that the elixir will be out of stock until the end of July.  Tablets are currently in stock (restocking occurred on May 15, 2024) so should be available.  
Generic Sodium Cromoglicate in good supply
The branded version of sodium cromoglicate called Nalcrom (Sanofi) is no longer distributed in the UK. Generic sodium cromoglicate 100mg capsules are in good supply from Somex Pharmaceuticals.  If your pharmacy is having trouble finding stock, please share the following codes with them so they can be certain they are asking for the correct products 

Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Vanessa’s Story
I am on Pariet [rabeprazole sodium], Lipidor [atorvastatin] and Prozac [fluoxetine]. I carry an epipen and Clarityn. I am allergic to Zirtek [cetirizine] and also Ventolin [salbutamol]. My worse problem seems to be a reaction to perfume and of course the depression which is under control with Prozac and a year’s counselling. I can’t eat 

Sylvia’s Story
I had various strange symptoms when I was young including extreme urticaria in sunlight and swelling of the lips and tingling when I had hot drinks. Oddly both these fizzled out in my 20s though I am still not very well in hot weather. I have an extreme wasp allergy and having been de-sensitized and 

Stuart’s Story
I just turned 40 this year. I have had the spots for as long as I can remember, which isn’t very long sometimes, but have only had the other symptoms for a few months. Last year I went to my GP as I had an upset stomach nearly every day for a few months. She 

Stephanie’s Story
I am 36, married with 2 little girls aged 10 and 3. For the last 6 years I have been treated for an increasing number of ‘allergies’. It was only when I suffered an anaphylactic attack that I was referred to an allergy specialist. After numerous tests they concluded that I had what they believed 

Stella’s Story
I first noticed my UP in about ‘99 – after numerous visits to the GPs I decided I would like them to refer me. I eventually saw a Dermatologist in March 2004, she biopsied me and couldn’t be certain what I had so I was then seen at the local hospital. After some discussion amongst 


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