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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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It’s a Bronze Medal for Immy!
Our young member, Imogen Sharp, won a bronze medal at the WUKF Karate World Championships in Dundee, Scotland in June 2018.    Immy competed for England in the Under-7s category and received her medal in the Kumite (sparring) competition.  Immy trains five days a week at the IESKA Karate Club in Stubbington under Sensei Martyn Styler.  Her 

Kelly and daughter Amber’s Story
I have 2 children one with mastocytosis, the cutaneous version. She is 18 months old and was diagnosed when she was about 6/7 months. I will be requesting Epipens, although Amber hasn’t shown any anaphylactic tendency just knowing it is possible I want to be prepared, this was all news to us! Also she has 

Paul’s Story
Paul has had type 2 diabetes since 1997. This year he was passed on to the haematologist by the thoracic specialist after a very persistent cough. After a recent bone marrow biopsy Paul was told he had systemic mastocytosis. CT scans showed his spleen was three times bigger than normal. No treatment has been suggested 

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Member Conference and AGM


10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda