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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Kylie and daughter Lucia’s Story
I’m Kylie and we have three daughters, my youngest Lucia is aged 7 months. Here is a bit about Lucia’s condition. Lucia was about 4 months old when she was diagnosed with Urticaria Pigmentosa, she had the spots on her body for about 2 months beforehand but the GP had no idea what they were 

Andrea’s Story
My name is Andrea and I developed the first signs of urticaria pigmentosa at about the age of 24 and I am now 43. I stopped going to see my consultant some years ago as it was simply a case of saying “Hello, keep taking the antihistamines and see you in 12 months time”. I 

Mandy’s Story
About three years ago, when I was 47, I noticed what seemed to be big brown freckles on the backs of my right forearm. They continued to appear, now on both arms, and a friend eventually said that it looked like a rash, and I should go to the doctor. It didn’t look like a 

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Member Conference and AGM


10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda