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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Max’s Story
I am 49 years old and was diagnosed with Mastocytosis at the age of 16. I have extensive UP, covering most of my body except my face and I have some systemic symptoms – like enlarged liver and spleen. The only adverse side-effects I have is that I do have reactions to anything alcoholic (although 

Daredevil duo raise £1,200 for UK Masto!
Congratulations to Jess and Sandra Hedley who recently jumped out a plane in order to raise funds for UK Masto. Their skydiving adventure was made all the more remarkable by the fact that the temperature outside the plane when they jumped was a wicked minus forty degrees… brrrr, that’s cold in anyone’s books. Jess and 

Adele and Mandy’s story
Mandy first showed her marks at 8 weeks old and they steadily progressed from there; I had been told by many GPs that it was eczema. At 8 months old I asked for her to be referred and for the next four months she had tests for everything. No one knew what it was but 

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Member Conference and AGM


10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda