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UK Masto - Support, Advocacy, Research


Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

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Hilary’s Story
I am Hilary, aged 58. I believe my UP began to appear around the year 2000, though it took four years and three different GPs before referral to a dermatologist who made the diagnosis in 2004. I hadn’t realised that the lumps that were coming up when I was in bed, after a shower or 

Jackie’s Story
My name is Jackie. I am 39 and married with 2 children aged 15 and 12. I was diagnosed with UP when I was 20. I was told by a dermatologist that there was no cure and to expect more spots by the time I was 30. I have a lot of spots on my 

Kirsten and daughter Maya’s Story
Maya, who has had UP [urticaria pigmentosa] since about 3 months, is now doing really well at 11, she has recently been getting better and better. As I have often said to other parents – there was an improvement in Maria’s Masto from when she was 3 – 4 but it was then very gradual, 

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Member Conference and AGM


10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda