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UK Masto - Support, Advocacy, Research

 

Vision for UK Masto:

To help deliver a cure for Mast Cell Diseases including mastocytosis and mast cell activation syndromes, and ensure all those with these diseases receive early and correct diagnoses, optimal treatment, and the emotional support they need.

Goals of UK Masto:

To support Mast Cell Disease patients so they can better understand their disease; to be the patients’ voice as advocates with all key stakeholders; and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

Learn More  

Danielle and daughter Marina’s story
Marina my daughter has Diffuse Cutaneous Mastocytosis (DCM) and she is now 26 months old. We had a long battle to try and get her diagnosed; she was finally diagnosed at 15 months old. At the age of 9 months she would crawl around and with any knock or bang she would blister. She gets 

Louise and Julian’s Story
My name is Louise, my son Julian is age four, he will be five in three weeks. He was diagnosed with UP two months ago. Julian got chickenpox when he was four months old. He was left with small marks on his skin. For years I assumed they were from the chickenpox. I had no 

Skydiving with Dawn!
Our very brave trustee and Masto Mum, Dawn Brogden,  jumped from 15,000 feet on June 30, 2018 to raise money for The UK Mastocytosis Support Group.  Dawn’s son Dylan, age 6, has cutaneous mastocytosis, and the group has been a great help to the whole family.  We are so proud of Dawn for her brave 

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Member Conference and AGM

 

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

Register here

Download Agenda


 


 

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