Tuesday, November 29th, 2022

MAKE YOUR VOICE HEARD!!! Surveys for patients and physicians

Systemic Mastocytosis (SM) patients and their physicians in the UK (and soon, elsewhere in Europe), please participate in this groundbreaking survey on the patient experience with all forms of SM, the burden it causes, and our unmet needs! We are excited to learn more about how patients experience life with SM– and the data can 


Wednesday, November 21st, 2018

Your donations DOUBLED on Giving Tuesday, November 27, 2018

PayPal Giving Fund is doubling donations to The UK Mastocytosis Support Group on Giving Tuesday, November 27, 2018. Your donations help support medical research, help us provide support to patients through events like our annual conference, and helps us educate doctors and nurses about mast cell diseases.  Please give generously! If giving is part of 


Friday, October 19th, 2018

Vanessa’s Story

I am on Pariet [rabeprazole sodium], Lipidor [atorvastatin] and Prozac [fluoxetine]. I carry an epipen and Clarityn. I am allergic to Zirtek [cetirizine] and also Ventolin [salbutamol]. My worse problem seems to be a reaction to perfume and of course the depression which is under control with Prozac and a year’s counselling. I can’t eat 


Friday, October 19th, 2018

Sylvia’s Story

I had various strange symptoms when I was young including extreme urticaria in sunlight and swelling of the lips and tingling when I had hot drinks. Oddly both these fizzled out in my 20s though I am still not very well in hot weather. I have an extreme wasp allergy and having been de-sensitized and 


Friday, October 19th, 2018

Stuart’s Story

I just turned 40 this year. I have had the spots for as long as I can remember, which isn’t very long sometimes, but have only had the other symptoms for a few months. Last year I went to my GP as I had an upset stomach nearly every day for a few months. She 


Friday, October 19th, 2018

Stephanie’s Story

I am 36, married with 2 little girls aged 10 and 3. For the last 6 years I have been treated for an increasing number of ‘allergies’. It was only when I suffered an anaphylactic attack that I was referred to an allergy specialist. After numerous tests they concluded that I had what they believed 


Friday, October 19th, 2018

Stella’s Story

I first noticed my UP in about ‘99 – after numerous visits to the GPs I decided I would like them to refer me. I eventually saw a Dermatologist in March 2004, she biopsied me and couldn’t be certain what I had so I was then seen at the local hospital. After some discussion amongst 


Friday, October 19th, 2018

Sheila’s Story

History of masto and me: Odd pink freckles appeared on my thighs in my early thirties, no other symptoms. In my late forties I mentioned it to my GP as they had multiplied significantly. By now I was also getting hives/nettle rash when stressed (I had quite a stressy job). He referred me to the 


Friday, October 19th, 2018

Sandra’s Story

I am 43 and first noticed spots on my arms about twelve years ago. These increased very gradually at first and were not recognised by a variety of GPs. I eventually asked for a referral to a dermatologist at my local hospital and was lucky enough to see someone who was able to diagnose UP 


Friday, October 19th, 2018

Samantha’s Story

I have always been fair skinned with lots of freckles so didn’t take much notice when on holiday in an extremely hot Corfu in 1986 (aged 23), lots more “freckles” appeared at the tops of my legs. They stayed the same until pregnancy in my early 30’s. Shortly after my first child was born, severe