Friday, March 22nd, 2024

Ketotifen Elixir and Tablets in stock with Alloga

Ketotifen tablets have been restocked as of March 19, 2024 and the Elixir returned to stock earlier in March. It can take some time for stock to return to the wholesalers (who buy from Alloga and sell to pharmacies).  Sometimes a pharmacy is willing to order directly from Alloga but be invoiced through the wholesalers Alliance 


Friday, March 8th, 2024

Ketotifen Elixir Back in Stock, March 8, 2024

Ketotifen (Zaditen) Elixir, which has been out of stock since December, is now back in stock as of March 8, 2024.  It may take several days for the supplies to be entered into the system at the distributor, Alloga.  As usual, if a pharmacy’s preferred wholesaler does not carry the product, it can be ordered 


Monday, September 11th, 2023

Ketotifen (Zaditen) Tablets Stock Due Week of December 4-8, 2023

Ketotifen tablets are out of stock.  We have been told they are expected back in the second week of December. Ketotifen elixir (liquid) is available and in stock with Alloga UK.   The code for the elixir is Code USP0832 ZADITEN KETOTIFEN ELIXIR 300ML S/Berry.  If your pharmacist is having trouble obtaining the elixir please 


Friday, August 11th, 2023

Generic Sodium Cromoglicate in good supply

The branded version of sodium cromoglicate called Nalcrom (Sanofi) is no longer distributed in the UK. Generic sodium cromoglicate 100mg capsules are in good supply from Somex Pharmaceuticals.  If your pharmacy is having trouble finding stock, please share the following codes with them so they can be certain they are asking for the correct products 


Tuesday, May 9th, 2023

Recall of all Emerade 300 and 500 mcg Adrenaline (Epinephrine) Pens

The manufacturer of Emerade pens has shared the news on May 9, 2023 that it is recalling all 300 mcg and 500 mcg due to a risk of malfunction.   They should be returned to the pharmacy and replaced with either an Epipen brand or Jext brand 300 mcg pen. Please see this link for 


Tuesday, April 18th, 2023

Ketotifen 1mg tablets back in stock on April 18/19 2023

Ketotifen tablets are arriving at Alloga UK today, April 17, 2023 and should be available for order by Wednesday, April 18 or Thursday April 19.  Pharmacies can order directly from Alloga UK and be billed through their preferred wholesaler, which may speed up delivery to the patient. For ordering information and regular updates on supplies 


Tuesday, November 29th, 2022

MAKE YOUR VOICE HEARD!!! Surveys for patients and physicians

Systemic Mastocytosis (SM) patients and their physicians in the UK (and soon, elsewhere in Europe), please participate in this groundbreaking survey on the patient experience with all forms of SM, the burden it causes, and our unmet needs! We are excited to learn more about how patients experience life with SM– and the data can 


Wednesday, November 21st, 2018

Your donations DOUBLED on Giving Tuesday, November 27, 2018

PayPal Giving Fund is doubling donations to The UK Mastocytosis Support Group on Giving Tuesday, November 27, 2018. Your donations help support medical research, help us provide support to patients through events like our annual conference, and helps us educate doctors and nurses about mast cell diseases.  Please give generously! If giving is part of 


Friday, October 19th, 2018

Vanessa’s Story

I am on Pariet [rabeprazole sodium], Lipidor [atorvastatin] and Prozac [fluoxetine]. I carry an epipen and Clarityn. I am allergic to Zirtek [cetirizine] and also Ventolin [salbutamol]. My worse problem seems to be a reaction to perfume and of course the depression which is under control with Prozac and a year’s counselling. I can’t eat 


Friday, October 19th, 2018

Sylvia’s Story

I had various strange symptoms when I was young including extreme urticaria in sunlight and swelling of the lips and tingling when I had hot drinks. Oddly both these fizzled out in my 20s though I am still not very well in hot weather. I have an extreme wasp allergy and having been de-sensitized and