Paul’s Story

Paul has had type 2 diabetes since 1997. This year he was passed on to the haematologist by the thoracic specialist after a very persistent cough. After a recent bone marrow biopsy Paul was told he had systemic mastocytosis. CT scans showed his spleen was three times bigger than normal. No treatment has been suggested 

Katie’s Story

I’m 44 years old with 3 children and was diagnosed with Urticaria Pigmentosa about 10 years ago. This happened purely by coincidence whilst I was visiting a dermatologist to have a suspect mole investigated – I’d actually been suffering with this strange rash that sometimes became raised and inflamed since my late teens! I underwent 

Kelly and daughter Amber’s Story

I have 2 children one with mastocytosis, the cutaneous version. She is 18 months old and was diagnosed when she was about 6/7 months. I will be requesting Epipens, although Amber hasn’t shown any anaphylactic tendency just knowing it is possible I want to be prepared, this was all news to us! Also she has