Kirsten and daughter Maya’s Story

Maya, who has had UP [urticaria pigmentosa] since about 3 months, is now doing really well at 11, she has recently been getting better and better. As I have often said to other parents – there was an improvement in Maria’s Masto from when she was 3 – 4 but it was then very gradual, 

Elaine’s Story

I am Elaine and I have had SM [systemic mastocytosis] for 3 years but it was only when I had been going to a dermatologist 9 years and now a new consultant. He did biopsy on my skin then sent me to Haematology, they did a bone marrow biopsy and SM was positive. I am 

Judy’s Story

Seventeen and a half years ago when I was 57 I was admitted to hospital after having five spinal fractures in less than five months and as a consequence lost five inches in height. I was diagnosed with severe osteoporosis. During my month’s stay the doctors were concerned about my spots/rash on my thighs inner