AGM 2017

AGM, December 2017 Impressions from new trustee, Andrew Dugdale: It was really good meeting those of you who attended the AGM on Saturday, my first exposure to actually meeting people in the group, rather than just ‘meeting’ via the list serve, and it was an excellent experience. What a great bunch of people we have 

Jason’s Story

I am 29 years old and am currently being seen by a consultant at a local hospital. Hopefully he will sort out an appointment with an SM [systemic mastocytosis] specialist soon. I first noticed the pink freckles appearing about 4 years ago and so went to the doctors where they told me it was acne. 

Danielle and daughter Marina’s story

Marina my daughter has Diffuse Cutaneous Mastocytosis (DCM) and she is now 26 months old. We had a long battle to try and get her diagnosed; she was finally diagnosed at 15 months old. At the age of 9 months she would crawl around and with any knock or bang she would blister. She gets