Stella’s Story

I first noticed my UP in about ‘99 – after numerous visits to the GPs I decided I would like them to refer me. I eventually saw a Dermatologist in March 2004, she biopsied me and couldn’t be certain what I had so I was then seen at the local hospital. After some discussion amongst 

Heather’s Story

I am 59 and I was diagnosed with urticaria pigmentosa in 1985. I was given PUVA treatment which made little effect on the UP other than to make me sensitive to florescent light for about 48 hours. I have had episodes of classic migraine (headache, flashing lights, noise and sickness) which I thankfully no longer 

Janette and daughter Helen’s Story

Shortly after Helen was born we noticed spots on her bottom. These later spread to the whole of her torso, front and back, some down her legs and up to her neck. On a couple of occasions, mainly in shops when she got too hot, the spots would become red and angry-looking. I took her