Iris’s Story

I was diagnosed with Urticaria Pigmentosa in 1983 and things remained calm for most of the time except if I was in the sun, or having a hot shower. I was covered in Pigment marks on most of my body and limbs but not my face. This was till around 8 years ago and things 

Max’s Story

I am 49 years old and was diagnosed with Mastocytosis at the age of 16. I have extensive UP, covering most of my body except my face and I have some systemic symptoms – like enlarged liver and spleen. The only adverse side-effects I have is that I do have reactions to anything alcoholic (although 

Stella’s Story

I first noticed my UP in about ‘99 – after numerous visits to the GPs I decided I would like them to refer me. I eventually saw a Dermatologist in March 2004, she biopsied me and couldn’t be certain what I had so I was then seen at the local hospital. After some discussion amongst