Judy and son Jon’s Story

Jon is now over 18 is doing great. He did not keep well for many years and nothing seemed to make much difference. He was diagnosed with masto when he was 4 months old.

His doctors started him on Gleevec [imatinib] about a year and a half ago and although there were side effects in the beginning he is now doing really well. He has put on weight and shot up in height and also has a girlfriend. He takes the tablet at bedtime and this wards off the side-effects while he is sleeping.

Jon does not have the [KIT] mutation. Gleevec is a type of chemotherapy and works well for people who do not have the mutation and it has certainly worked really well for Jon.

This is such good news when we think of the time Jon had.

[mastocytosis, imatinib, child]