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COVID-19 Vaccine Statement and Survey

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Masto News

UK Drug Trials for Systemic Mastocytosis Opening/Expanding

Trials for two new medications for people with systemic mastocytosis are recruiting patients in the UK. Blueprint Medicines is expanding its Phase I trial of Avapritinib in adults with Advanced Systemic Mastocytosis (Aggressive SM, SM with an Associated Haematologic Disease and Mast Cell Leukemia) and is launching a new Phase I trial of Avapritinib

Cycling 1,000 Miles for Abi

Mike Fekete, whose wife has mast cell activation syndrome (as well as Ehlers-Danlos), cycled 1,000 miles to raise money for our charity. Through the generosity of his friends and family, Michael raised an impressive £1507.50 pounds. We asked Mike a few questions about how he went about organising and completing this great event… So how

Stella’s Story

I first noticed my UP in about ‘99 – after numerous visits to the GPs I decided I would like them to refer me. I eventually saw a Dermatologist in March 2004, she biopsied me and couldn’t be certain what I had so I was then seen at the local hospital. After some discussion amongst

COVID-19

Vaccine Statement

Medical Advisors of The UK Mastocytosis Support Group have prepared a statement on COVID-19 vaccines and mast cell diseases. We expect this statement to evolve as we learn more about how people with mast cell diseases are doing with their COVID-19 vaccinations, and as more vaccines are approved for use in the UK.

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Vaccine Survey

If you have had a COVID-19 vaccination and have a mast cell disease, please consider responding to our survey so that we can learn more about how people with MCDs are doing with these vaccines. Vaccine Survey

COVID-19 Statement

We have compiled advice for UK patients with Mast Cell Diseases from UK Mast Cell Disease Doctors.