Monday, June 25th, 2018

Cycling 1,000 Miles for Abi

Mike Fekete, whose wife has mast cell activation syndrome (as well as Ehlers-Danlos), cycled 1,000 miles to raise money for our charity. Through the generosity of his friends and family, Michael raised an impressive £1507.50 pounds. We asked Mike a few questions about how he went about organising and completing this great event… So how 

Wednesday, May 30th, 2018

Skydiving with Dawn!

Our very brave trustee and Masto Mum, Dawn Brogden,  jumped from 15,000 feet on June 30, 2018 to raise money for The UK Mastocytosis Support Group.  Dawn’s son Dylan, age 6, has cutaneous mastocytosis, and the group has been a great help to the whole family.  We are so proud of Dawn for her brave 

Thursday, December 14th, 2017

AGM 2017

AGM, December 2017 Impressions from new trustee, Andrew Dugdale: It was really good meeting those of you who attended the AGM on Saturday, my first exposure to actually meeting people in the group, rather than just ‘meeting’ via the list serve, and it was an excellent experience. What a great bunch of people we have 

Thursday, December 14th, 2017

Daredevil duo raise £1,200 for UK Masto!

Congratulations to Jess and Sandra Hedley who recently jumped out a plane in order to raise funds for UK Masto. Their skydiving adventure was made all the more remarkable by the fact that the temperature outside the plane when they jumped was a wicked minus forty degrees… brrrr, that’s cold in anyone’s books. Jess and