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Member Conference and AGM

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

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Masto News

Megan and son Clement’s Story

Clement was around 2 months old when his first spot appeared on his tummy. A few more started appearing on his tummy and back then when he was 5 months old we went to see a skin specialist who diagnosed UP [urticaria pigmentosa]. More spots appeared on his torso, also a few on his arms,

Raymond’s Story

I have been diagnosed with Idiopathic Anaphylaxis (IA). It all started at the tender age of 48 when I woke in the night, head ringing, itching all over and when I looked in the mirror a face the size of a football. I uttered the famous words to my wife “I think there’s a problem”.

Naomi’s Story

I currently take ranitidine, loratadine, sodium cromoglicate, montelukast. I took interferon A for the past seven months but it had no effect. My main symptoms are headache, stomach problems, severe bone pain and extreme exhaustion. I had a third bone marrow biopsy to confirm the gene affected. I have had two bad reactions to the

DONATE

Please consider donating to support The UK Mastocytosis Support Group and help us provide support, advocate for patients and fund research into mast cell diseases.

We especially welcome donations on Giving Tuesday, November 27, 2018, when PayPal Giving Fund will double your donation to us!!

We are a registered UK charity (1154007).

CONTACT DETAILS

Registered name:
The UK Mastocytosis Support Group

Address registered with the Charity Commission:
31 Foxholes Lane
Altofts
WF62PD
E: info@ukmasto.org

Charity number is: 1154007

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