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Member Conference and AGM

10th November is our member Conference and AGM at Jury’s Inn, Hinckley from 10.00 to 17.00. We look forward to seeing you all there.

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Masto News

Judy’s Story

Seventeen and a half years ago when I was 57 I was admitted to hospital after having five spinal fractures in less than five months and as a consequence lost five inches in height. I was diagnosed with severe osteoporosis. During my month’s stay the doctors were concerned about my spots/rash on my thighs inner

Megan and son Clement’s Story

Clement was around 2 months old when his first spot appeared on his tummy. A few more started appearing on his tummy and back then when he was 5 months old we went to see a skin specialist who diagnosed UP [urticaria pigmentosa]. More spots appeared on his torso, also a few on his arms,

Alana and son Jay’s story

Jay is 22 months old and was diagnosed with Urticaria Pigmentosa when he was about 13 months old, although he has suffered with it from when he was a few days old. He has a rash all over his torso and legs most of the time and suffers from stomach cramps and loose stools.

DONATE

Please consider donating to support The UK Mastocytosis Support Group and help us provide support, advocate for patients and fund research into mast cell diseases.

We especially welcome donations on Giving Tuesday, November 27, 2018, when PayPal Giving Fund will double your donation to us!!

We are a registered UK charity (1154007).

CONTACT DETAILS

Registered name:
The UK Mastocytosis Support Group

Address registered with the Charity Commission:
32 Foxholes Lane
Altofts
WF62PD
E: info@ukmasto.org

Charity number is: 1154007

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