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Welcome to the UK Mastocytosis Support Group Website

On this website we have tried to bring together information for sufferers of Mastocytosis and Mast Cell Activation Syndrome.

Both Mastocytosis and Mast Cell Activation Syndrome are largely unknown to most GP's and many specialists. We hope that by using this website you will not only be able to gain information for yourself, but will be able to use it as a source of information for your doctors.

The UK Mastocytosis Support Group offer their sincere thanks to

Irene Wilson

founder of our group in May 2004

for her drive, guidance and patience with us all, and to the many learned and willing people who have contributed articles to this website.


On her retirement 3rd October 2015 at our Group AGM we bid a fond farewell to Irene Wilson. Irene started the Support Group in May 2004 after being diagnosed with Mastocytosis and unable to find any other person with the condition. Her tireless and selfless efforts have seen the group rise to almost 300 members, achieve charity status and gain global recognition by Mast cell doctors.

Her Legacy will continue through the charity and support groups dedication.

We are very pleased to appoint Irene as Honorary Chair of our UK Mastocytosis Support Group.

Irene Wilson we THANK YOU! And wish you a very Happy Retirement


Two of our very first members who joined in 2004, Roger and Liz Richmond also retired along with Irene. Irene said, ‘over the years Roger and Liz have played a very big part in helping me take our group to where it is today. Roger was instrumental in obtaining charitable status for our support group and both Roger and Liz have stood by my side helping every step of the way making our group what it is today’. Roger and Liz we wish you both all the very best for the future

Irene, Roger and Liz retiring 3rd October 2015

Imortant - Please click here to go to our News Page to read about our two newly appointed co-leaders